i need to report an abduction…. Got a call today while running errands on my lunch hour. This conversation happened today with my ridiculously self-absorbed sister, S:
S: I need to talk to you. This isn’t about Mom, she’s fine. This is about me. It’s all about me.
daisyfae (inside her head): i’m stunned-shocked-amazed at this! YOU? Talking about yourself?
daisyfae (to S): Ok. What’s up?
S: They found another lump in my breast. I went in today for a Halo Breast test – have you heard of it?
daisyfae: No – what is it?
S: It’s a new way of looking for cancer – they said because of the type i had before, i’d be a good candidate, but they weren’t able to make it work. Hurt like hell. But that’s not why i’m calling.
daisyfae (inside her head): Ah – here it comes!
S: They also asked me about doing genetic testing for breast cancer. Have you heard of that?
daisyfae: Yes – i had it done last year. Came back negative. i thought i told everyone in the family about it. Key thing with the breast cancer mutation – it’s not only about breast cancer, but ovarian cancer as well. If it runs in a family, there is typically rampant cancer (30%-40% of the women) – and we don’t have that on Mom’s side. i did the test to look on Dad’s side because his Mom died of breast cancer, he was an only child, and we just don’t know that much…
S: That’s good news.
daisyfae: Do you know of history on your biological father’s side?
S: His mother died of breast cancer, but he had a bunch of older aunts – i don’t think there were more cases.
daisyfae: Statistically, it’s probably a low chance. Now, will your insurance pay for the test? It costs about $3000 and there’s only one lab in the U.S. with the license to do the testing.
S: I’m not sure. I’ll go back and ask before agreeing to this.
daisyfae (looking at phone number to verify this is, in fact, Sister, S): Ok. Keep me posted – and let me know if there’s anything i can do. Did a lot of research on this during the 3 weeks i had to wait for the results… Genetic testing is an interesting business** and i can help you navigate some of it.
S: OK. Oh, and don’t tell Mom – I don’t want to worry her about this. I don’t think it’s a big deal – I’m not afraid. I just want to figure out how to handle all this crap without too much disruption.
daisyfae (staring at phone. considering drafting a press release): No problem – and hey, you’re one tough little nugget! Way to go! Let me know what you need!
daisyfae (inside her head): […..]
* Not an optimal word choice for this sister. She’s the one with the “concealed carry” permit.
** i stopped short of my rant regarding the intellectual property issues relating to “Genetic Testing Patents”. A law (Bayh-Dole Act) that was intended to speed the transition of research has, in fact, hindered many such transitions – by allowing patents for on gene identification processes. A quagmire has evolved, and the result is reduced access to relatively straightforward testing. This slowed down research into development of a SARS vaccine, as many lawyers first had to sort out who “owned” the patents… Baby steps. She was doing good, but not ready for this particular rant… Sorry. [soap box returned to cupboard under sink]